Home sweet Home

Today March 27th Bentley was discharged (hopefully for the last time ever) We couldn't be happier with the results. We would still be there if it were up to the residents, because they think he should be eating "textbook" volumes which he never has. So after a difference of opinion, and the help of a great nurse and charge nurse, he was released. We really would like to thank everyone who helped out ~ it made things a lot easier. From helping with the other kids, meals, visits, prayers, thoughts, understanding and flexibility at work~ we are thankful. Your help got us through.....THANK YOU.  Bentley will have several follow ups, they say until he is 18 but should have a "normal" life and even be able to play sports if he chose to. There is a chance he will develop a hernia on the stomach, we aren't sure how likely but we will deal with it "if" it happens. ~If you ever need proof of a miracle~here he is!

Have I told you how amazing our baby is???

Bentley is out of ICU!!!!! After a bad day and harder night~he did it....Bentley had  major withdrawl's from all his narcotics~that is SO hard to watch. But today he was moved to a unit to recover fully. He also only has 2 tubes, His central IV and a ng tube. He is off oxygen and is breathing 100%. Today they started a "trickle" feed to see if his tummy could handle it and so far so good. Chris has been at the hospital  so I am home with the kids and grandma for a change of scenery but we will trade tonight, so he can get to work tomorrow. I think the news might be slow from now on, as all Bentley is working on is feeding. So here's hoping we get home soon.

March 17th

On March 17th Bentley underwent a four hour surgery to repair his omphalocle. We thought he would be going for a skin closure and start a staged muscle repair "if" the Dr thought it was possible.  Well it WAS possible......a FULL closure was done. Bentley has been in ICU since, but is doing really good. He has had a few rough momments but turns around quickly. The plan is to "try" and take out his breathing tube tomorrow and Monday moving out of the ICU to a regular floor. We are crossing our fingers. Our little boy continues to amaze the medical field and us~he is one tuff kid. We will continue to update for those of you who wonder, please keep him in your thoughts as he is not "out of the woods" yet. 

check up

 Last Sunday we were back to the hospital for another surgery. He has now had a hernia on both sides of his groin. But they are both fixed. Today we went for a check up with Dr.Wong~ he was suprizingly pleasant today!! Bentley is having his "big" surgery on March 17th. The plan is to close the skin and pull as much muscle together as possible without comprimising his heart and lungs. He will be admitted on the 16th and they said to expect to be there at least 7 days....as scary as it is We are SOOO excited to get it over with. Both sets of grandparents are coming up to help out, we are thankful for that. Keep our baby in your thoughts. Thanks.